Upcoming Topics

I have several topics up and coming in this blog in the next several weeks. My younger daughter will be going in for scans in April and I will detail how those are done. I will also be adding Reiter's Syndrome which is another form of arthritis that is rarely mentioned which my oldest daughter has struggled with over the last several years.

Alex's Lemonade Stand

As some of you may have noticed, I have added a button at the top right of my blog for Alex's Lemonade Stand. The reason for this is that this is the disease that my daughter died of 18 years ago and that my younger daughter has thus far beat.

I read Alex's story with tears in my eyes and felt compelled to add this link to my site.

My older daughter has plans for a great Lemonade stand this early summer in the area she lives in. She is hoping to utilize a friends car lot and some radio station coverage to boost her sales and increase awareness of Neuroblastoma.

There isn't a lot of information out there and this is a great way to increase public awareness. While it is not a disease that is familial for all families, there are the few that it is familial in. For our family the research that Dr. Merris and Dr. Mosey have done has been life saving. It will be even more so for future generations!

Please take a moment to look over Alex's Lemonade stand and see how this disease can be turned into a positive thing.

No one wants to lose a child to this devastating disease. Please help in the research for an answer.

Thank you!

Nerve Blocks

Sadly these do not seem to be working. My son is increasingly ill after the injections. For one injection he started vomiting while the needle was still in his back which could have caused a myriad of problems including permanent nerve damage or a ruptured disk. It seems that physical therapy and the Lyrica and Tramadol work the best thus far.

I appreciate all of the great suggestions and ideas every one has sent to me for ideas for this disease. Working together we can help to control this disease.