We've been doing great health wise in dealing with our various familial diseases.
About 2 weeks ago our oncologist called us to let us know that the researchers have come up with a test for the Familial Neuroblastoma. The hope is that the family members that are of childbearing age will be able to take this test and see if they will be able to pass it along to their children. If so then they can have an amniocentesis during the pregnancy to see if the child a. has the disease, or b. is a carrier. Modern medicine is fantastic.
The sad part about this test is that without insurance the cost is prohibitive at $4,000 per test!!! Please pray with us that our older daughter will be able to procure the medical insurance to take this test prior to her marriage slated for July 2009.

1 comment:
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